In an episode of the Love, Hope, and Lyme podcast, host Fred Diamond interviewed What Lurks in the Woods author Nicole Bell about her husband Russ Bell’s experiences with Lyme disease and Alzheimer’s disease—which eventually led to his death. Ms. Bell detailed that her husband was an outdoorsman who spent considerable amounts of time in wooded environments. After presenting with mood-based symptoms such as depression, irritability, anger, and irrational thoughts; becoming verbally abusive; and developing memory loss; Ms. Bell took her husband to visit four neurologists and two different functional medicine practices, where he was diagnosed with early-onset Alzheimer’s disease. Despite her husband initially testing negative for Lyme disease prior to his Alzheimer’s diagnosis, Ms. Bell emphasized that Lyme disease was identified as the root cause of his neurodegeneration and has previously been documented in the cases of many other patients with Alzheimer’s. However, tick-borne infections have historically been difficult to identify and treat. With chronic Lyme disease, patients often need to make adjustments to their lifestyle, diet, and sleep. Additionally, caregivers may experience mental health issues as they help their loved ones manage their chronic diseases. Ms. Bell underscored the significance of practicing self-care and stress reduction for caregivers. Since her husband’s death, Ms. Bell has worked to boost funding for Lyme disease research in an effort to help find a cure.


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