A significant movement toward including patient-reported outcomes in rheumatic disease research and implementing them in clinical treatment has recently been observed, according to a report from Rheumatology Network. Investigators highlighted that these outcomes—which include symptom burden, quality of life, functionality, and health-care experience—may better characterize the pain phenotypes, symptoms, and individualized treatment requirements of each patient; as well as promote shared decision-making between patients and clinicians. Utilizing patient-reported outcomes may also reduce marginalization among patients who identify as female, Black, and Hispanic, who often report feeling unheard in a medical setting. Recent studies conducted by patient advocacy groups have further bolstered support for the incorporation of patient perspectives in patient-centered research initiatives such as rheumatic disease educational programs for marginalized communities and vaccine hesitancy reduction plans. Findings from these studies have suggested that when patient-reported outcomes are included, they may effectively reduce underrepresentation, improve health and quality of life, and increase treatment success among patients with rheumatic diseases. The investigators hope to see greater implementation of patient-reported outcomes in research and clinical practice as recognition for its benefits continues to rise.


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