Investigators have identified determinants of health that may impact quality of life in patients with systemic lupus erythematosus in Vietnam, according to a new study published by Mizukami et al in BMC Rheumatology. The investigators explained that factors such as pain, fatigue, fever, hair loss, low self-esteem, treatment uncertainty, depression, anxiety, and misunderstanding, as well as a lack of support from family or friends, can all result in a higher burden on patients’ quality of life. In a cross-sectional study, investigators asked 134 Vietnamese patients with lupus to complete a survey regarding their determinants of health-related quality of life. They discovered that patients who were older or had anxiety were more likely to score lower on the mental health summary and patients who had more children were more likely to score lower on the physical health summary. Further, those who reported feelings of helplessness or hopelessness tended to score lower on both the mental and physical health summaries. However, patients who had greater social support and information support, had greater access to daycare services, and were more satisfied with their lives demonstrated better mental and physical health scores and a greater quality of life. In a companion report on the study from HCP Live, the study authors underscored: “Continuous support can improve [health-related quality of life] of patients with [lupus]. When resources are limited, self-support groups can provide [them] with a safe space to share their anxiety and experiences.” The investigators hope their new findings can help raise awareness of the factors contributing to poorer quality of life in patients with lupus who reside in low- and middle-income countries.
June 30, 2023